A to Z of Ehlers Danlos Syndrome: B is for Blue Sclerae


The whites of your eyes are known as Sclerae. Babies often have a bluish tinge to them. This is because the collagen that forms them is thin, and the blue colour that is underneath can be seen through them. This fades as a child ages and the collagen thickens, so that by the time they are around two, the whites of their eyes are truly white.

Except, in the case of connective tissue disorders, the Sclerae never thicken properly and so a blue tint remains past childhood. It is not a formal diagnostic sign of conditions such as EDS. But can provide a strong hint that there is an underlying collagen disorder.

My Sclerae do have a bluish tint to them, but it is not as pronounced as others I’ve seen. And try as I might, I haven’t been able to photograph it. Rather than stressing about getting the perfect image of my eye, I’ve found some good photos in this blog post. You can clearly see the blue tint in her eyes.

So, if you have similar blue Sclerae, you might have a connective tissue disorder. (Though I do need to point out that there are other causes of blue Sclerae.)

[image is of a blue background with the following words in white: B is for Blue Sclerae]

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